The Myelin Project Adrenoleukodystrophy Research, Advocacy, Patient Support Since 1989

An 501c3 non-profit focused on ALD adrenoleukodystrophy and AMN adrenomyeloneuropathy research, advocacy, and patient support.

OVERVIEW

This domain myelin.org currently has an average traffic ranking of zero (the lower the better). We have researched nineteen pages within the website myelin.org and found two hundred and eighty websites associating themselves with myelin.org. There is two contacts and addresses for myelin.org to help you communicate with them. There is three social communication accounts belong to this website. This domain myelin.org has been on the internet for one thousand five hundred and fifty-eight weeks, nine days, nine hours, and thirty minutes.
Pages Analyzed
19
Links to this site
280
Contacts
2
Locations
2
Social Links
3
Online Since
Sep 1995

MYELIN.ORG RANKINGS

This domain myelin.org has seen a variation quantities of traffic all over the year.
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MYELIN.ORG HISTORY

This domain myelin.org was began on on September 05, 1995. As of today, it is one thousand five hundred and fifty-eight weeks, nine days, nine hours, and thirty minutes old.
REGISTERED
September
1995

PERIOD OF EXISTANCE

29
YEARS
10
MONTHS
10
DAYS

LINKS TO BUSINESS

Abracadabra Baby Our hopeful adventures in PGD IVF

Our hopeful adventures in PGD and IVF. We are over the moon. Little one, you were more worth the wait than we ever imagined.

ALD AMN Family Support

Hope is the companion of power, and mother of success; for who so hopes strongly has within him the gift of miracles. What is the first things we should do? Countdown to Leukodystrophies Awareness Month. Wednesday, December 28, 2011. CLICK ON LINK BELOW TO ORDER. Posted by Cure The Boys ALD Awareness. Tuesday, December 20, 2011.

ALD Foundation - Raise Awareness

Adrenoleukodystrophy, or ALD, is a genetically determined neurological disorder that affects 1 in every 17,900 boys worldwide. The presentation of symptoms occurs somewhere between the ages of 4 and 10, and affects the brain with demyelination. Welcome to the ALD Foundation. Get it on Amazon! Get it at Barnes and Noble! Join Our Email List.

ArchAngel MLD Trust

Thank you for your support. Through research, her parents discovered the San Raffaele Hospital in Milan, Italy. In January 2014 Ava was accepted as the 12th child in the world to participate in the trial and her transplant was successful. Her DNA has been corrected and her new cells are actively halting progression of the disease.

Que Bello es Vivir

Bad things, de Jace Everett. Viernes, 11 de septiembre de 2015. Bad things, de Jace Everett. Letra traducida en este enlace. Domingo, 30 de agosto de 2015. Hero, Family of the year. Letra traducida en este enlace. A la memoria de Sir Nicholas Winton. Nicholas Winton fue un filántropo británico de origen judío que salvó a 669 niños del exterminio Nazi. En el 2002 fue nombrado Caballero del imperio británico y desde e.

The Biochemistry Questions Site A free Biochemistry Question Bank for premed, medical students and FMG

A free Biochemistry Question Bank for premed, medical students and FMG. April 25, NATIONAL DNA DAY.

WHAT DOES MYELIN.ORG LOOK LIKE?

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CONTACTS

The Myelin Project

PERFECT PRIVACY, LLC

12808 Gran Bay Parkway West

Jacksonville, FL, 32258

US

The Myelin Project

Greg Benton

12808 Gran Bay Parkway West

Jacksonville, FL, 32258

US

MYELIN.ORG HOST

I identified that a single page on myelin.org took zero milliseconds to load. We could not detect a SSL certificate, so therefore we consider myelin.org not secure.
Load time
0 seconds
SSL
NOT SECURE
Internet Address
107.180.51.87

NAME SERVERS

ns7.worldnic.com
ns8.worldnic.com

TITLE

The Myelin Project Adrenoleukodystrophy Research, Advocacy, Patient Support Since 1989

DESCRIPTION

An 501c3 non-profit focused on ALD adrenoleukodystrophy and AMN adrenomyeloneuropathy research, advocacy, and patient support.

CONTENT

This domain myelin.org states the following, "How to Get Lorenzos Oil." Our analyzers analyzed that the webpage also said " ALD and Lorenzos Oil Teacher Packet." The Website also stated " How to Get Lorenzos Oil. ALD and Lorenzos Oil Teacher Packet. All donations are fully tax-deductible. Established in 1989 by Augusto and Michaela Odone for their son. A rare genetic myelin disease that deteriorates myelin in the brain and central nervous system. Now adopted throughout the world." The website's header had The Myelin Project as the most important search term. It was followed by Lorenzos Oil Augusto Odone and Lorenzo Odone adrenoleukodystrophy which isn't as highly ranked as The Myelin Project.

OTHER WEB SITES

Myelin Projects Blog Just another WordPress.com weblog

A Huge, Incredible, Remarkable Stride in the treatment and halting of Adrenoleukodystrophy. Which featured a young boy affected with this disease. To date, in both pat.

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